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Registry Privacy


All information is strictly confidential. Patients will never be identified in any publications, reports or presentations resulting from the Registry. After entry into the Registry, all paper based forms are stored securely in a locked cupboard, within a locked office space.  After a specified period of time forms are disposed of by secure shredding.

All information will be handled in accordance with the Commonwealth Privacy Act (1988) including the Privacy Amendment (Enhancing Privacy Protection) Act 2012 and all other State and Territory laws and regulations.

These include:

 New South Wales       Health Records & Information Privacy Act 2002 No 71 
NSW Health Privacy Manual 
 Australian Capital Territory   Information Privacy Act 2014
Health Records (Privacy and Access) Act 1997
 Victoria   Privacy and Data Protection Act 2014 
 Tasmania   Personal Information Protection Act 2004
 Northern Territory    Northern Territory Information Act 2003 NT
 South Australia   Code of Fair Information Practice
Health Care Act 2008   
Queensland   Information Privacy Act 2009
New Zealand     New Zealand New Zealand Privacy Act 1993
Health Information Privacy Code 1994