Registry Forms and Patient Information
Patient Information Statement
All patients admitted to a participating hospital for CSF shunt surgery will be sent a patient information sheet from the Registry or given this information in hospital. This sheet explains what the Registry is about and how data is collected.
Download a sample Patient Information Statement here
Brochure
This brochure gives an overview of the aims and objectives of the Shunt Registry
If you are in Australia - click here
Data Collection Form
This form shows what data is collected for entry into the Registry.
Please contact the Registry ([email protected]) if you are a hospital site requiring forms
Download a sample Data Collection Form here
Opt-out
This form allows you to remove some or all of your information from the Registry.
There are two opt-out forms
If you are the person who has had the surgery and would like to opt-out out - click
here
If you are a parent/guardian opting out on behalf of someone else -
click here
ACT |
Information Privacy Act 2014 |
Health Records (Privacy and Access) Act 1997 |
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VIC |
Privacy and Data Protection Act 2014 |
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NSW |
Health Records & Information Privacy Act 2002 No 71 |
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TAS |
Personal Information Protection Act 2014 |
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QLD |
Information Privacy Act 2009 |
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NT |
Northern Territory Information Act 2003 NT |
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SA |
Code of Fair Information Practice |
Health Care Act 2008 |
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NZ |
New Zealand Privacy Act 1993 |
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Health Information Privacy Code 1994 |